Introducing the Bobby Jones Classic
In partnership with the Jones family, we are hosting the Bobby Jones Classic for CSF to enjoy a day of golf with you and your friends, while we all celebrate the memory of golfer Bobby Jones. The event will generate new awareness of Chiari malformation, syringomyelia, and related causes of paralysis. Jones was diagnosed with syringomyelia and spent the last twenty-five years of his life with progressive paralysis. This event will also reintroduce East Lake Golf Club where Jones learned to play.
This event provides a unique opportunity to become immersed in the classic life, legend and sport of Bobby Jones at historically significant East Lake Golf Club, Jones’ home course. Meet Bob Jones IV, grandson of the legendary golfer; Sid Matthew, famed Jones historian and author of The Life and Times of Bobby Jones; and Charles Harrison, nine time former Atlanta amateur golf champion and a member of the Georgia Sports Hall of Fame and Georgia Golf Hall of Fame. In addition, experience the thrill of playing Hole 11, at East Lake, with Hickory shafted golf clubs, the same type of clubs that Bobby Jones carried during his remarkable 1930 "Grand Slam."
Chiari Malformation, Syringomyelia & Related Disorder Awareness
CSF and the Bobby Jones Classic raised awareness with NBC Sports and the TOUR Championship by Coca-Cola on Saturday, September 13, 2014 when Emmy-award winning sportscaster Jimmy Roberts interviewed CSF Chairman, Mr. Paul Farrell, and noted Bobby Jones historian, Dr. Linton Hopkins. The pair discussed the terrible disorder that brought Bobby Jones' legendary golf career to a swift halt: syringomyelia. This disorder occurs when a cyst is formed within the spinal cord causing severe chronic pain, loss of bowel and bladder control, loss of sensation to heat and cold, paralysis, and in extreme cases, death.
Farrell and Hopkins sat down with Roberts to spotlight a disease and its related disorders that even today are still relatively unknown, despite the fact that syringomyelia, Chiari malformation and their related disorders affect over a million peole in the US, alone; more than ALS (also known as Lou Gehrig's disease). While ALS had its "ice bucket challenge," similar awareness for diseases such as syringomyelia has yet to be sparked. Roberts and NBC Sports hope that the awareness generated from this interview will raise the funds necessary to combat the disease that claimed Bobby Jones. Press Release.